Important Links for Caregivers

I will not discuss intimate details on this blog because although Mom would not understand it, I would like to maintain her dignity.  There are websites, however, that can be used to get information about the personal issues such as incontinence, details of bathing, etc.  I've included some that I have found useful below and will add more as I find them.

I strongly suggest anyone dealing with a loved one with Alzheimer's read the book, Still Alice, by Lisa Genova.  Although fiction, it is a well-researched first person account of what it is like to have Alzheimer's.  More information can be found at www.stillalice.com.

Another important read is for the caregivers and family members.  The 36 Hour Day covers all aspects of caring for someone with Alzheimer's, whether loved one or care receiver.

The Alzheimer's Association is a tremendous resource and even offers online coaching to help caregivers do their job and stay healthy while doing it.  http://www.alz.org/index.asp

Caring for Aging Parents offers a great discussion forum and is a great resource for tips and tricks in dealing with the various issues that arise when caring for those with any kind of dementia or other health care issues.  http://www.agingcare.com/

The National Institute on Aging also has a lot of helpful information.  This particular page talks about safety but I have also used them for specific care like foot care.  http://www.nia.nih.gov/Alzheimers/Publications/homesafety.htm#top

http://www.nia.nih.gov/HealthInformation/Publications/footcare.htm

I found a wonderful playbook - compliments of a post on agingcare.com.  It can be downloaded for free or purchased if you want a hardcopy.  http://www.alzheimersplaybook.com/

This is a good resource for understanding the memory issues of dementia.  http://www.alzheimercambridge.on.ca/Understanding%20the%20Dementia%20Experience.pdf

This provides information about the signs of dying.  http://www.amitabhahospice.org/public/helpful_info/signs_of_dying.php

Another wonderful publication was written by Coach Broyles, legendary football coach and former University of Arkansas Athletic Director.  A download can be found at http://aging.uams.edu/alzheimersplaybook.